European Glut1 Deficiency Organization

News

Coronavirus and Glut1

We are aware that the coronavirus is causing considerable anxiety for our families and many of us are wondering if Glut1 patients are at additional risk. At a time like this, it is more important than ever to seek information from reliable sources, so we thought this would be a good opportunity to call on the expertise of our medical board.
We now wanted to pass on to you all what we have heard from Professor Pierangelo Veggiotti from Italy – we think it’s good news considering the circumstances!
Professor Veggiotti says:
“The experience of Lombardy, which unfortunately is very wide, suggests the idea that children are very little affected, only with mild respiratory events, and that Covid, at present, does not induce epileptic seizures or encephalopathies .To date, we have not seen, and I hope in the future, a particular vulnerability in children with neurological diseases.
Unfortunately, however, children are incubators of the disease and can transmit it, so the choice to close schools is appropriate.
All the best...... fingers crossed.”